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Sites with information about Dravet's Syndrome / Supportgroups (from professionals and parents) :

An email group for carers and parents of kids with SMEI (severe myoclonic epilepsy fo infancy) also called Dravet Syndrome. Encouraging friendship, exchange of information and support:
click here to visit this site!

Subscribe to SMEI
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The International Dravet Syndrome Epilepsy Action League:
click here to visit this site!

The Epilepsy Research Centre (previously known as the Epilepsy Research Institute) is Australia's leading clinical epilepsy research group.
click here to visit this site!

 

 

Personal sites from Dravet-Kids:

Shazza's Site, Mother of Jarod (Little Man), a Dravet-kid. You can find Jarod's story here and a lot of information:
click here to visit this site!

 

Sydney's Site, Living on Faith ~ Looking for a Miracle:
click here to visit this site!

 

A Miracle for Alex:
click here to visit this site!

 

A Dravet Butterfly, Vanessa:
click here to visit this site!

 

 

We do not want to advertise for any company here, but here you can find companies who have useful products or interesting information at their site:

The manufacturere of Topamax®, the site also contains the Patient Information Leaflets:
click here to visit this site!

 

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