Name: Sydney

Sex: female

Date of birth: April, 2001

Now lives in: KY, USA

Epilepsy info

Dravet's Syndrome 2004, after seeing 4 Neurologist in 3 different states! Positive for scnia mutation

type(s) of seizures:
Tonic Clonic, Tonic, Myoclonic, Absence, Drops, Partial, Complex Partial

frequency of seizures:
some days 300 seizures, some days only 50 seizures

Medications used

IVIG, Topomax, Clobazam (her best combo yet!)

Keppra, Depakote, Ativan, Lamictal, Topomax, Klonopin, Zongran, Diastat, Fosphenytoin and more!

Alternative Treatments

Ketogenic Diet
Chiropractic care- Clinical Neurology-Visual Therapy

Personal Notes

First Seizure at 5 months
At it's worst..
As many as 4 Tonic clonics a day (but rarely, thank God!)
Myclonics as often as every 5 seconds
6 status over 1/12 hours each
immune to Diastat..using Versed

Currently..(June 2006)
IVIG, Topomax, Clobazam!
Sydney has a certified seizure alert dog.


Mum: Dina (
Sydney's Website:

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